Day 12

Actually, it is now Day 13.

Day 12 started out with some scary moments:  Chris experienced 2 episodes of pretty severe tachycardia (that means, increased heart rate), the second episode more severe than the first.  Scary for Chris and mom, but apparently it is not uncommon after such major surgery (what “major surgery”?, Chris asked—haha) when there has been manipulation of the heart, and much of the circuitry has been rewired.  So a bunch of IV drugs and he was again concentrating on the world cup.  Priorities—and diversion!

Justin, Chris, and I had our “Medications Discussion” with the transplant nurse, who very patiently and efficiently explained the purpose and dosing off each of the meds.  There are actually 24.

 

The pneumothorax of Day 11 had resolved by mid-afternoon and his last chest tube was removed.  He “celebrated” by taking a brisk stroll around the 10^th floor unassisted and unattended (by a nurse), with an entourage of his 2 cousins and mom. 

And the plan is for him to be discharged this morning.

          --Dana

Dana O. Doheny, MS, CGC

Genetic Counselor, Research Coordinator

Mount Sinai School of Medicine

Department of Genetics & Genomic Sciences

1425 Madison Avenue, 14-75A

New York, NY 10029

212-659-6779 (O)

212-659-6780 (F)

866-322-7968 (toll-free)